Showing posts with label food aversion. Show all posts
Showing posts with label food aversion. Show all posts

Tuesday, August 27, 2013

Much left to do

Now that the feeding program is over and I no longer have to go to the hospital three days a week or work ten hour shifts there may be a sense of normalcy returning, at least until Arts Fest begins ramping up again. There will be weekly follow-ups at the hospital for the time being.

My son made progress. There are some new things he would not eat before. He is now eating blended, canned vegetables and fruit. He's also drinking a lot more milk.

What really surprised me is that he is eating Hormel Chicken and Dumplings.



He still has hiccups. Gagged on some apricots that where not blended to his liking and had a fit at school when the chicken and dumplings had a piece of chicken that was not liquified. This coming from a kid who will eat peas that are as thick as guacamole.

School started for him yesterday. Aside from him getting out of his bed and me finding him sleeping at the top of the stairs at 3AM, he seemed to adjust well. Maybe I will.

Monday, August 6, 2012

I need something to calm me down

It takes hours for me to decompress from my son's behavioral therapy sessions. He seems to recover quickly from screaming, crying and melting down at various points during the hour.

His torture is a small amount of mashed banana mixed into in smooth yogurt. He will struggle to touch the spoonful with his teeth, refuse to wrap his lips around it. When it enters his mouth he will put his fingers in there to remove the food, prevent himself from swallowing the poison. Then he will shake the offensive goo off his hand, spraying it around the room, or wipe the combination of spittle, yogurt and snot on his shirt in a panic. His voice a primal scream of pain and extreme discomfort.

The same horrors happen when a quarter of a miniature vanilla wafer is crumbled into a powder, then mixed in with some caramel cream pudding. His Mother got to witness this first hand today, distressing is an under statement.

The bases are foods that he likes. The mix ins, the solids, go into his system like daggers. We do not know where this profound aversion to food comes from, or started. 

We try not to get angry, keep neutral when the negative behaviors occur, when food is thrown, when he pushes food or plates and makes them fly. We do cheer when a bite is taken, cheer louder at a second. Even the iPad is not very effective as a bribe, a positive reinforcement.

No one seems to know what it will take. He's going to be ten next month and does not weigh fifty pounds. We're not even sure if inpatient therapy would help. It's not available in Columbus, and we're not sure if it's anywhere near us. Cleveland, perhaps? Then there's the insurance issue. Hell, even if unlimited funds were available, I'm not sure this would be solved. He's getting good help, or I'd like to think that, and we're received some good advice from all over. The hardest work is up to him though.