Showing posts with label school. Show all posts
Showing posts with label school. Show all posts

Thursday, August 17, 2017

The streets were full of slow moving cars

My son started school today and is technically in ninth grade. It's hard enough to let that try and sink in before realizing he will be fifteen in two weeks. He's growing taller, his feet are almost as big as mine and we're going out for new shoes this weekend.

The rest is still unknown.

Received a direct message a couple of days ago from a person who had never heard of Tom Lehrer before they came across my blog. The person was having a rough time of it recently and the discovery of his music really improved their mood. I was thanked profusely.

Glad that I could make a difference in a small, positive way. Something I thought about after a rough day in which I sat in traffic four about three and a half out of four hours straight then walked into a boisterous and loud restaurant when all I wanted was a tiny bit of peace and quiet. I plodded through, and my lovely wife did her best to improve my own stressed out ass.

Now if we all could try and make that much of a difference to better shit.

Sunday, April 9, 2017

Akai Hana did not pop out at me

Been ill most of the week, a lingering malaise of various internal organs. Each day I last about a half hour further before a quick fade out that leads into not being able to fall asleep.

At least the taxes are done. After all the financial changes of the past year we had them done professionally and what a relief. Total piece of mind, even if we owed.

It's still autism awareness month, right? Am I still aware? I'll find out more tomorrow afternoon.

It seems Brew Dog have sold a chunk of themselves to a capital firm. Looks like that's how they're going to fund the hotel on the Canal Winchester property. Things are getting weird now that the punk founders are multi-millionaires.

All of this could be a moot point if this administration starts blowing up more than runways.

April is national poetry month too. The less said about my writing, the better.

Instead of continuing, it might be time to get into that strawberry parfait.

Friday, September 16, 2016

Failure to thrive

Traveled last weekend and came back with a sickness that has been kicking my ass this week. All the humidity on Long Island combined with going into air conditioning and not enough (never enough) rest added up to something nasty taking hold on my system.

Did get some things sorted about with my Aunt's estate. I now have the rest of her pictures and went though my Father's pictures and did some scanning. A lot of memories went by, good and bad ones. Did end up driving on the LIE during afternoon rush hour to see my Sister in LIC. Nice neighborhood, with a cool view a few blocks from her apartment.



Driving was tiring. Put over 1,500 miles on the car, and it performed wonderfully. Still, it was a long trip in a shot amount of time. That, and my son's annual IEP meeting always adds up to additional sadness and inadequacy as a parent. The meeting went well enough, his Mother had concerns about the amount of a therapy he was to receive, which made sense to me. That my son is attending a new school and they're still getting to know him adds more to the uncertainty. He does seem to be doing well there. We were very concerned about how he would take the transition to a new school and pickup and exchange between his Mother and I, but that has not been a problem. Which is a very good thing.

Called an accountant today, we're meeting next week to talk about finances. This is a first.

Week two of my NFL hiatus is in full effect. Weird getting messages during the game and comments directed to me the next morning about what happened the night before. I do not know the specifics, I see the headlines, but do not know how the Bills are sucking.

Now, back to trying to rest or avoid writing.

Tuesday, August 30, 2016

Another good one taken

Bill Hurley was connected to life. A very intelligent man of many talents. He came to Writers Block a few years ago and he earned and deserved our love and respect. A fine poet, a fine Father and Husband. We're going to miss him.

Meanwhile, I keep pulling myself away from the poetry and arts scene slowly. Feeling like I have nothing left to offer because I'm not as directly affected by the topics of the day than others. Don't know if it's age, social or financial status but it's become hard to connect and much much easier to stay at home. If it's not my Son's sleep schedule, my own schedule is wearing me out.

My Son will be 14 on Thursday. He seems to be adjusting ok to the new school and schedule. A much better adjustment than this summer's caregiver. There are still so many challenges and I feel like I'm running out of time somehow. It's hard to connect with him too frequently and that frustrates me as the circle of self blame is all around me.

Solo trip next week. At least the car has roadside assistance.

Thursday, August 18, 2016

So in about seven hours

My son starts eighth grade today. We transferred him to a new school that focuses on students with autism and special needs. Middle school has been tough. The communication from his teacher was poor, despite our efforts to get information about him. When your son is non-verbal, he cannot really tell you how his day was, and we rarely got news. There were other factors in out decision also. A decision both I and his Mother felt had to be done.

So the transitions for the next few weeks will once again be challenging, probably. There is no bus service so one of us will be dropping him off and picking him up, every day.

I got a short tour of the school on Monday, his Mother went to the open house yesterday and met his new teacher - as did he. I was at a library convention I had previously committed to. I'll pick him up later, and see how traffic is before 4PM in the northern part of Columbus.

Wednesday, August 26, 2015

Eating and reading amidst all the chaos

Today was one of those days when you just want to come home and get under a blanket with a bottle of whiskey. A traumatic first day of school for a soon to be thirteen year old turned into a double murder live on air. It was hard to focus on anything while having a discussion of local politics with a local party high up which turned into laughter when it was revealed a local community that thrives on authenticity is getting a mall pizza shop in their neighborhood. For once I was happy that the west side was neglected. Quite the social media day considering I culled about fifty people my list earlier this week.

Then one of the baby pandas at the National Zoo died.

At least my wife loves me even when I think my kid does not.

At least I am thankful to have Saga and Martin try to solve murders in Sweden and Denmark for a few more hours.

And the Mets keep winning.

Did manage to find a decent low priced Chinese take out in the area recently. There is a great Thai place in the back of an Asian market that we frequent, but sometimes you just want the sweet and sour chicken or pork strips without all the heat. There is one place that recently changed ownership and is now called Asian Wok, but I'm not feeling the need to be a pioneer. So I did some Yelp research and gave Peking Wok on West Broad a chance.

The Wife and I like it. She says the lo mein is quite good. I can vouch for the sweet and sour chicken and roast pork and snow peas. The only minor miss was the fried dumplings. For plenty of food we paid about fifteen bucks. It's in the Franklinton Center and it's a hole in the wall but they're busy making very tasty things in their kitchen.

Been trying to read more and am almost succeeding. Recently finished a very good crime book from the UK. Here's my Amazon review

From the author of the Eoin Miller trilogy comes Ways To Die In Glasgow, a new crime thriller from Jay Stringer. Sam Ireland is a Glasgow private investigator who gets involved in a case that becomes much more complex, and deadlier than she expected. Stringer also gives us the story from the perspectives of Mackie, a violent young man with a missing gangster Uncle and Lambert, a detective who tries to stretch the system as much as possible to his benefit. It's a fast paced dark and witty romp with a high body count. Men are missing, lawyers and policemen are corrupt and steadfast - just like life. Stringer writes about his now home city with great detail and gritty affection. We're shown the dark, violent pubs and the spotless purity of legal firms, with plenty of one liners and wit that rises above the many blood stains. A good read by an author with a promising future, and that cover of Coney is brilliant.

I've also just cracked the spine of Neurotribes a look at autism from a historical and scientific perspectives. Steve Silberman has done some impressive research with this heavily buzzed about book. Hope to finish it sooner than later.

And to finish, here's a cool new song by the great Darlene Love.



Monday, January 26, 2015

Quick update on the Sleep Chronicles.

Last night he got to bed around 11, woke up just after 2AM, fell asleep less than an hour later.

It did not really matter much as school was cancelled due to the weather. We had three inches of snow here and school was called off.

Let that sink in as you realize the North East is about to get 2-3 feet of snow.

A delegation from the Democratic National Committee was here today to continue evaluating the city's worthiness for the 2016 convention. Wonder what went through their heads when they saw all the chaos three inches of snow caused. I know the convention is in the summer, but heaven help us they see a local weather forecast of hyperbole and panic when there is a chance of a thunderstorm. That's how Columbus handles a crisis.

My son's also been bringing me Green Eggs and Ham to read. He hands me the book. Points at the words on the cover of the book and says, "Ham," when he gets to that word.

I also have him saying, "Sam-I-Am," at the appropriate moments - which he does do, but very quietly.

Now he's upstairs jumping on his bed.

Wednesday, August 20, 2014

Sixth grade: day one

Sixth grade: day one

They do not tell you how many times your heart breaks
as you watch your child grow up
The pain of leaving him in a classroom he does not know
after being in a different school for seven years
The look of fright, a shock in his eyes you cannot erase
for his mind or your own
When you leave your son alone with a group of
peers and strangers for the first time
Knowing he will not tell you about any of it
at the end of the day
That he cut a circle with scissors
or some bigger kid, and they’re all bigger than him now
poured milk down his back
The silence at days end of five years of schooling
five years of rides on the short bus
twelve years of life
is insignificant compared to the swirl of everything
that happens in his head from minute to minute
No one knows what is coming to us
we can's live in fear, put him in a bubble
but we have to hope
dammit, that’s all we have some mornings
when he’s up at 2AM telling the ceiling
the script to an episode of Dora the Explorer
all I can say, with more sleep deprivation
than sense
is vamanos.

Saturday, August 9, 2014

Sucky next 38 hours

After too many nights of interrupted sleep caused by my son not sleeping through the night we've decided to try something new. When he was much younger and had the same problem we tried melotonin and it had a reverse effect. This was at least eight or nine years ago. Tonight we slipped some liquid melotonin in with his pudding. Not sure what the results will be but he was not interested in drinking the milk we put it in last night - where he went to bed around 10PM and woke up about six, which for him is a good night.

So he's lying on the couch right now, which is normal for him. When he falls asleep and whether or not he sleeps through the night is now the question.

This was also one of those days I'm not sure if he understands what is happening. I drove him up to his new school and explained to him that he is going to be going here soon, that it is his new school and that it's going to be like his old one but different too. His response was to put his hands over his ears, which is a newer thing of his to do. We have a soon to be twelve year old surly teenager.

Not sure if my blood pressure is dropping the way my doctor would like. I'm on two medications for it now. Monday I'm undergoing a medical procedure which means I can't eat any solid food tomorrow and have to purge the system, as it were.

When my two older brothers hit fifty and develop cancer means I have to be vigilant, hence the procedure. Who knows when my genetic switch will activate?

In the time I took to write this, his eyes are closing, and he's out. Not sure if it's the melotonin or not.

Now if the idiots in my neighborhood would stop shooting off fireworks it can be even quieter around here.

Friday, May 30, 2014

Fives here and there

Yesterday was my son's last day of fifth grade. Onto middle school and the further great unknown.

There was a ceremony on Wednesday and my son, along with every other kid in the school, got awards.


Next up is sixth grade, we're waiting for the lottery results. Should know where he's going sometime next month.

Today is also our fifth wedding anniversary.



We celebrated by going out to dinner at a fancy restaurant and had great food and wine while dodging nature's detritus on the patio. She's a good one. 

More fives are on the way, but we can bring that up in a couple of weeks. 

Monday, April 28, 2014

Expectations vs. capabilities

Today I attended my son's last Shakespeare and Autism class. It's a fascinating idea to get autistic kids communicating through the work and exaggerated facial expressions and gestures of Shakespearian plays. This is a video about it that was released last year, my son is in this video.



The play the facilitators chose was The Tempest and the kids and actors were jumping around, calling themselves Caliban and having a good time. I met the person who has been my son's acting partner for the past two years, a very sincere and devoted actor and teacher. This is them on the program's webpage.

Today my son came into the gym with his partner, saw all the people and chairs set up (there were about 15 people watching, which does not happen) and said, "Why did you do this?" He does not like crowds. That he would say something about it speaks volumes.



About five minutes into the session, my son got up and walked away. His partner followed him, kept him in the room and they sat away from the group for the rest of the session.



And they stayed there, I'm sure the crowd did not help, my presence was probably a distraction as well. It's one of those times you want your son to participate, or even watch from the close sidelines instead of stress and reluctance. It's hard to watch, and harder to balance your own expectations with what your child wants to do, and his capabilities.

Sunday, March 23, 2014

A dropped syllable reveals so much

My son is somewhere between 57-58 pounds now. I weigh him on the scales at the pool every couple of weeks. He is slowing gaining weight, definitely not losing. He eats fine for me, we introduced creamed corn into his diet and he has not put up any real fuss. Yes, that creamed corn is also blended, hard to wrap your head around but that's part of the challenge.

Tonight we were doing some drawing and I wrote out his first and last name and asked him to repeat it, which he did. I think that was the first time I heard him say his last name, which is all odd and unsettling to me. It defines a lot of the difficulty and what we have to face. And why didn't I do this years ago? I cannot imagine how difficult it is for him to process everything.

After that I wrote out Columbus, Ohio. I've heard him repeat Ohio before, which he pronounces as "Hi-O."

The school lottery form is being filled out and sent by his mother. She's the residential parent so it's her responsibility. We hope he gets into the place we toured, many of his classmates end up going there so we hope for that familiarity for him. So many changes ahead, including physical, which we are nowhere near prepared for.

Sunday, November 24, 2013

If you can read this, you are being tagged

Working on various projects, including the Arts Festival, is taking up some creative time. Wish I was not so distracted and unfocused. A piece of paper flew off the table earlier, written on it are the names of two schools to research. My son will most likely be attending one of them next year. He'll be in sixth grade and in middle school.

Time flies.

I do not read comic books. The published works of DC Comics and Marvel and their filmed editions have no real meaning in my life other than small entertainment.

I have never watched an episode of the Wire and still, somehow, have managed to hold down a full time job.

I avoid doing anything in binge format, although I've watched a few episodes of The Kids in the Hall in a row since finding it on Netflix.

There is not enough Life to watch or click on everything that I'm told is important, or life changing or worth my time.

My own things are going. I do not telegraph everything I do months in advance. I got stuff going on even while I'm looking through who died this month on Wikipedia. You do not want me to post about how my physical health has been the past 48 hours. My TMI has filters that respect the audience. Even if I knew no one would read it, I would not post any details.

I'm in the last few months of 1962 in this fantastic book on The Beatles. I was mistaken in thinking the Bob Spitz book would be the end of a close to definitive biography of the band, but Mark Lewishon's research and scholarship is amazing. I hope to write more about this volume when I finish it.

I like Peter Capaldi as an actor and welcome his interpretation of Doctor Who. Is that a high crime?

I'm disappointed in the new Arcade Fire record, is this reason for me to get spammed?

As I write this, The American Music Awards are on. I have no idea who these people are that my friends are tweeting about. Nor am I particularly concerned enough to change the channel to find out. Life goes forward. No need to hack.

I do not take my pop culture personally when it goes against me, but find something else to take up my time. Maybe even do something that is important and life changing, but I usually watch a soccer documentary about a great player from Hungary on youtube through my television instead. A friend tweeted a link about the Hungarian soccer team in the fifties and I was intrigued, so I found the documentary on youtube. It did not change my life, but it was worth my time.

I hold grudges. Tom Glavine for giving up seven runs in 1 1/3 innings in a game the Mets needed to win. Kevin Dyson for catching that ball. I will go to my death knowing it was a forward lateral. At least one ex-wife hates me enough to block me on Facebook. I did not like Lou Reed after seeing him live.

You do not want to see me with facial hair. I tried it years ago. It looked like crap. I am not making myself look like crap for a month of manufactured awareness of a horrible disease.

And do not be that guy by correcting me about the Glavine stat if I'm wrong. I have not looked it up. I'm just a guy on my couch, watching New England get their ass beat on Sunday night football. It's in the second quarter, the game can change. The game can always change. I'm a Bills fan, I know this. I'm a Mets fan, I know this. I support Everton, I am used to mediocrity. I would never tell anyone that the Bills/Blue Jackets/Everton/Mets/Celtic are important, life changing or worth your time.

It's become much, much easier to scroll past than comment.

Buster Keaton though, you should consider.

Anyway, Arcade Fire's next record might be good, so can Mumford and Sons'.

What happened to the hope in all the vitriol?

I am imperfect though, taking in some schadenfreude while the Patriots are losing badly, at home.

Wednesday, October 2, 2013

This and that on three and a half hours sleep

While on an after dinner walk around German Village earlier this evening, I realized it has been eleven years since I lived there, and eleven years that I have lived in this house. It's the longest I've lived in one home. Now I'm trapped by the market, and other reasons, and cannot get out of there to live, where? Someplace where I can walk to something other than an IGA where a girl got shot in the face and a half-assed but not altogether unpleasant carryout.

Getting really tired of lists. Every time I see a Buzzfeed.com post on social media that has a list of something like "Fifteen Best Bob Dylan Songs With a Horn Section" or something similar, I scroll past. That and people labeling a TV show or cultural event as the best of all time, or the second best of all time after _____. Something else to scroll past. Great stuff is great stuff. Lists are arbitrary and yes, I'm a bit tired and cranky.

My son fell asleep on the couch at 9:30 last night and woke up at 2:30AM. Did not go back to sleep until about 5. He woke up and ate well, but then his bus was late. Again. Had to drive him to school. Again. Yes, it's getting worse. It was so bad last Friday that his bus was two hours and forty five minutes getting home from school. Yes, you read that right. Complaints have been made, investigations are supposedly happening. One justifiably worried parent filed a police report after her children's bus was missing. When you're not able to get through to transportation, what recourse do you have? Even after all this, I'm not sure the district gets it.

Yesterday morning I got to show my wife the International Space Station as it flew overhead. It was a bright, solid, light that moved across the sky in the pre-dawn hour. A good thing that shows cooperation can happen even as the ground below spins out of control.





Tuesday, August 27, 2013

Much left to do

Now that the feeding program is over and I no longer have to go to the hospital three days a week or work ten hour shifts there may be a sense of normalcy returning, at least until Arts Fest begins ramping up again. There will be weekly follow-ups at the hospital for the time being.

My son made progress. There are some new things he would not eat before. He is now eating blended, canned vegetables and fruit. He's also drinking a lot more milk.

What really surprised me is that he is eating Hormel Chicken and Dumplings.



He still has hiccups. Gagged on some apricots that where not blended to his liking and had a fit at school when the chicken and dumplings had a piece of chicken that was not liquified. This coming from a kid who will eat peas that are as thick as guacamole.

School started for him yesterday. Aside from him getting out of his bed and me finding him sleeping at the top of the stairs at 3AM, he seemed to adjust well. Maybe I will.

Sunday, June 2, 2013

Digging in the folders on the bookcase

Been battling vertigo again this weekend. Same damn thing I had a couple of years ago, left me out of commission yesterday. I was able to get to work today and have been slowly regaining equilibrium.

This Tuesday night, June 4th, I will be reading as part of the Wine and Poetry on High Series at Camelot Cellars, at 958 North High Street. It starts at 7PM. I'm reading for a half hour and Izetta Thomas will be my partner in poetry. It's going to be a smashing evening. I've been looking over what I'm going to read and found a few older ones that I have not read for awhile so I'm looking forward to bringing those friends back into play. I have more than a half hour's work. Easy. But I do not want to repeat the same things I did for the Writers' Block Fundraiser a couple of weeks back. Nor do I want to repeat much for my feature at Paging Columbus in August. It's a matter of mixing the so called hits with the work I want to present. They're nowhere near where I want them to be, and probably never will, but pockets are deepening. It's a pleasure to know I can pull out half an hour of poems without feeling it sucks.

We're only five days away from the Columbus Arts Festival. Trying to get fit for the long weekend. A lot of hard work by everyone went into this festival and I can't wait for the results to show for it. I'd get excited by jumping up and down but I'd get dizzy very quick.

My son's last day of school was Thursday. This Tuesday his aide for the summer beings watching him during the day. I'm nervous and excited about this all at once. Really want this to benefit everyone involved.

Sunday, April 7, 2013

A new stage for Shakespeare

I mentioned this and linked to a video about it a couple of weeks back. The Dispatch did an article about the Shakespeare and Autism in today's issue. Click on the link.

A new stage for Shakespeare

Thursday, March 28, 2013

Another old college try

My son has been involved in a program called Shakespeare and Autism for most of the school year. It was started by some actors from the Royal Shakespeare company in partnership with The Ohio State University. There's an hour class that he takes at school every week. It's hard to say how much he's getting out of it, he's not coming home spouting lines from the Tempest or babbling in iambic pentameter. Ok, it would be cool if he did a little bit of that.

You can read about the program here. It's an interesting take on socialization and developing verbal skills. I hope they're successful with it.

There's also a video, my son's in the background.



The kid with the dark shirt is very sweet. When I see him he always asks if I like trains.

I think my son is the only autistic kid on Earth who is not interested in trains.

Tuesday, October 2, 2012

Really should start packing, or pacing

Today I am home with a sick child. The boy has a cold and cough. He got some rest last night, but needs more - and for the cough to diminish some more. Hoping I do not get what he has because I'm going to IWPS tomorrow and having a voice is kind of important in a poetry slam.

Yesterday was also his IEP meeting, which is always an hour of lost hope for me. I'd go on about it, but it's too damn depressing. I also had my goals and objectives meeting at work, which is all I'm going to say about that here, too. A double whammy I do not recommend anyone having to go through in a day.

Trying to get my act together for the trip to Fayetteville, it's tough with all the other stuff that is going on. All I can say is that I'm going to do my best.

Friday, August 24, 2012

Normalcy advances

Coming back from a vacation in which there was little rest has been a tough adjustment. There's been a lot to do at work, which has resulted in slug like behavior at home. My wife did some more work on the back porch last night and I moved some record albums around while ditching some useless shelving.

Trying to get prepped for Wednesday's Grand Slam too.

My son started school this week and his bus has been extremely late in picking him up. So late we've had to take him to school. The bus home was an hour late the first day and 48 minutes late on the second. I do not consider that an improvement. Cannot get through to the transportation department, wonder why? Out of his first two days we spent about three and a half hours waiting for a bus.

Maybe they'll get it right by November.